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accepted for anti tnf
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Rank: Advanced Member
Groups: Registered
Joined: 2/26/2010 Posts: 271 Location: hampshire
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Hi all, have had 2 das screenings and have been accepted for the treatment. Really pleased and also a bit nervous! I am trying not to pin all my hopes on the treatment! Ive been given a load of leaflets to read and have plumped for Golumumab which is self injected once a month. Ive got to wait for the letter to arrive to tell me to go and get a chest x rray and then wait for the phone call to say its all systems go.
Has anyone else used this medication at all?
Hope you are all well and looking forward to Christmas!
Love Heather xxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Heather,
That's great news! I haven't been on that anti-tnf but humira has given me a much better quality of life than I had before, so hope Golumumab does the same for you.
Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Hi Heather, Good luck with the new drug - I`ve barely heard of it, let alone been on it! Like Doreen I`ve had real benefits from humira, so hope the Golumubab is the one for you. Kathleen x
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Rank: Advanced Member
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Joined: 12/3/2009 Posts: 854
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Hi Heather. Me too! I have just had the chest x ray and awaiting the blood test before starting treatment. Will be good to have someone else in the same boat.
Eleanor x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 714
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Hi Heather
Me too. It is also known as Simponi. The funding has been authorised for me to go on it but it has yet to go through our Drugs and Ethics Committee in Shropshire. I will be the first patient to try it in Shropshire.
I have failed on both Humira and Enbrel, so hoping that this might be the one.
Good to know other people are also going to be on it. Keep us posted.
Jackie xx
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Rank: Newbie
Groups: Registered
Joined: 11/25/2011 Posts: 6
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I started on this a couple of weeks ago. I was on Enbrel which was brilliant for a year but had a massive flare and ended up with Rheumatoid Vasculitis. I tried Humira but was allergic to it. I'm not sure whether the Golimumab is working yet as I'm on a really high dose of steroids at the moment. I am the only person my health authority has on it so it will be interesteing to see how you get on too.
Good luck
Mary
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